Sean is a fun and happy 15 mo old. He is walking and climbing and trying to keep up with his big brother and sister. He and Rohan have the sweetest relationship. Of course Sean thinks Rohan is the best thing in the world and Rohan loves Sean to death, so they are so fun to be with. Poor little miss Pearl is in the middle ad with her feisty disposition, there is a lot of sibling rivalry with both her older and younger sibling. On the one hand we are the normal busy parents of three adorable little kids. On the other, we are the worried and sometimes emotional parents of a baby born with a severe cleft lip and palate. What that is like is sort of like being told something really bad is going to happen, but then experiencing it in fragments spread out over many many months and years. We can't tell if we've been through the hardest part or if it is yet to come. We won't know until Sean's January visits if they will be doing another palate repair AND another lip repair surgery when he is two or if those will be just one surgery. We won't know until after that if he'll need a surgery at age three or four. We don't know what comes next or how many extra surgeries he'll need beyond the predictable five they told us about when he was new. Even then, they don't know he does or doesn't make certain sounds, until his teeth come in this way or that, until his ear tubes fall out, until the first orthodontic work is done, until the palate expander has done some work, .until....until....until...... In short, we won't know what we've gotten ourselves into, really, until he is a teenager and we've already gone through at least half of what they will ultimately do to try and repair what people think to be a simple facial deformity.
But, it cannot be denied, he is cute as a button, super fun and adventurous and a little precocious. We love our Sean Michael no doubt!!
No comments:
Post a Comment